So, I had this plan that I was going to be keeping a live journal of sorts for the Radioactive Iodine. Then I realized just how boring it was. In a nutshell, here's how my last 4 days have been.
"I Wake up" I say that in quotes because even though my eyes are open, it take a couple of hours for me to actually wake up. Literally.
Eat a piece of candy I have to keep my salivary glands stimulated so as not to damage them with the radiation. Your salivary glands use iodine also.
Eat a piece of candy
Eat a piece of candy
I eat food Nothing much more to say about that.
Eat a piece of candy
Eat a piece of candy
I watch tv/movie or play video games. I would read a book, but that would involve physical movement. Im still so hypo I dont even want to turn pages. Nor do I want to be mentally taxed by reading a book. Daytime tv is mindless enough.
Eat a piece of candy
Eat a piece of candy
Eat a piece of candy
Eat a piece of candy
Eat a piece of candy
Eat a piece of candy
Eat a piece of candy
I eat food again.
brush my teeth.
consider throwing up from all the candy
I try to convince myself that im sleepy enough to actually sleep. Since im so tired from being so hypo its quite hard for me to actually fall asleep. That and the fact that I have enough sugar coursing through me to kill a diabetic with just my breath. For instance, its 2am now and I want to sleep...but its not happening right now.
So, if you are seven years old thats an awesome schedule. I however, am not seven years old. (My wife says I act like im 15) There is also lots of water and lots of time spent in the bathroom, but you dont need to hear about that. The good part is that I have had very few side effects and the ones I have had have been minimal. I didnt have much throat pain or any other localized pains really. They tell you that you could have throat pain because the radiation is killing off your thyroid but since mine was removed completely, all I have now is an empty space that I use as storage for chewy beef snacks. I was hoping to have some pains around my collar bone areas since my doc said I might still have some infected lymphnodes in that area but I dont think it hurt there. I had a bit of a head ache on day one, but not much more than that. The hardest part about all of this has been trying to avoid my wife. Literally. I have to stay atleast 6 feet away from her until about day 5. There is good news however....
Today was is my last day on the LID diet and come kick off (im a rabid LSU football fan) i will drowning myself in a bowl of piping hot queso and chips. I also get to go back on my hormone tomorrow which is arguably the more exciting part. im not sure what my TSH number (in a nutshell its a gauge for how hypothyridic one is) is anymore, the lady at the radiology place said she had never seen a number so high in her 15 years. (it was high enough that the scale either broke or the scale stopped counting. im not sure which.) Im so ready to have energy again.
Thats about it. I just wanted to write something short for a change to let everyone know whats been up. I sound like a broken record when i say this, but thank you. To all of my friends and family and anyone else who has said an encouraging word to me, it means the world to me to think that your thinking of me. It really is overwhelming to me.
Until next time, just let your SOOOUULLLLL GLOOOWWWW yall.
Saturday, September 4, 2010
I am a rock, I am a 3 Mile Island.
Tuesday, August 31, 2010
Nick vs. the LID in a game of Roshambo.
For about a second.
Then I put on my best Rex Kwon Do pants and roundhouse kicked that notion in the face!!
Starla would have been proud of me.
Anyway, I really did consider eating more veggies and if I ever have to repeat this whole process, I might actually go through with it. However, there are a couple of things that stand in my way. The first is the fact that I don't really like many of them, the second is that I don't know the first thing about preparing them. Also, I promised an LID junk food blog.
As a fat guy, you know i loves me some junk food. It has been said that I have yet to meet a partially hydrogenated processed food stuff that I didn't like. If you have been reading this blog though, you already know that the LID will not suffer such fare as it tends to be crammed to the brim with potentially iodized salt/sea salt or soy and dairy and pretty much everything else I'm not allowed to eat. If you are a newly diagnosed Thyca patient, then chances are you will have to do this diet at some point. Don't freak out though, seriously, you're above that. Instead, I'm gonna show you some stuff that I have found that has made my life over the last 19 days a little easier.
After what seemed like my 27th pound of trail mix, I decided that the the "salty, crunchy" button in my brain wasn't being pushed. Like any good junkfoodie, my first instinct went to potato chips. Since I was already in full on LID mode, I decided that I was going to have to make them on my own. It made sense (to my increasingly hypo brain) and the core ingredients are LID safe, so why not? Well...it didn't work out like I hoped. Long story short, I only succeeded in making flat round french fries and narrowly avoiding 3rd degree burns after my pot of hot oil boiled over. The end result was still deep fried potatoes (or sweet potatoes in this case) and they were tasty but didn't keep well.
Later that week, after one of my many blood tests, I found myself walking around Sprouts. For those of you who don't have a Sprouts, it's kind of like Whole Foods, only the people watching isn't nearly as good and I feel like I can shop there without being a self-conscious tool bag. I didn't think I would ever find a pre-processed potato chip that was LID safe, but as luck would have it I did find these:
Overall, they aren't too bad. A little bland maybe, but doable. It occurred to me that I could apply my own iodine free salt later on and that would perk them up a bit. It wasn't until much later that I realized I could season the chips however I wanted. My current favorite is salt and chipotle pepper powder. I may never buy normal potato chips again. I am Bob Ross and these chips are my own crunchy little blank flavor canvases.
There are going to be times that you want to switch it up though, and if you live anywhere south of the mason-dixon line and west of the mississippi river, tortilla chips are arguably the more important chip. They are indeed, the ultimate vehicle for the topping of your choice. For whatever reason though, I had it in my head that tortilla chips are a flour product, (wrong) so I was delighted to find out that they are in fact, made of corn. After scouring the chip aisle I found these:
I should mention that this particular brand of chips is very local to me here. They are produced about 15 miles away from where I live and I don't know how widely distributed they are. However, should you be able to buy these chips, you should do it. I bought two big bags for around 5 bucks. Seriously, only jerks who hate money and use it to set fire to orphans wouldn't buy these.
As much as I like these particular chips, it annoys me that I cant bathe them in my favorite chip dressing, queso. (that's cheese dip for you folks in places that get snow) I'm sure some of you are asking why I don't just season them like the chips above or pair them with a freshly made salt free salsa or something like that. I would respond by saying that my brain is mostly mush and just the simple act of existing is tiring at times to me now. To remedy this situation my wife and I emptied about half a bag onto a baking sheet, juiced a
Happy that I had the stuff to meet my chip quota, I made my way to the front of the store and stumbled upon a snack-ish food that i had not really ever considered, sesame sticks. They look like something you might put on or in an asian style salad or something like that, or as my friend put it, "looks like a bag of turds." (Yup, those are my friends.) I turned my attention to the labels and found an unsalted variety that fit my prerequisites and was cheap enough to take a gamble on. As it turns out they were pretty good, though they give me heart burn if I'm not careful with them. Again I took License to
These little things really are quite decent (if you like turd shaped sesame) and I plan on trying out the flavored versions as a football gameday food this fall. A pound of this stuff goes a really long way, and at $4.00 per lb its hard to beat.
So at this point you are probably saying, "Wow Nick, thats awesome that you have spent so much time on a food that provides so many empty calories! But, I'm bored with chips. What other kinds of junkfood alternatives have you
Im glad you asked.
Again, if you have to be on the LID it can be quite easy to read the "what not to eat" part of the diet and get hung up on it. I know i did for awhile but thats because "going hypo" makes you a tad bit, um, testy. (Read: assholish) When I decided to read the "allowed foods" part I discovered that on can have diet colas! Which is good because I live smack dab in the middle of Dr. Pepper country and I do enjoy one from time to time. Be mindful of colas or dark sodas (or "pop" for you yanks)because even though you can have them, the diet prefers you to have ones without caramel coloring in them. You can also have candy (as long as there is no Red Dye #3 in it) such as gummy bears or marshmallows. So if you are a candy person, have fun with that.
I have to admit to being a bit bummed out when I read that I was not supposed to have chocolate, but my homie and fellow Thyca superstar Radioactive Girl dropped a little tip on me. She said that if I could find a substance called "pareve" that I could indeed have chocolate. Being the uneducated gentile that I am, I admit that i thought that pareve or parev (both seem to be acceptable spellings) was a kosher chocolate of some kind. This is not necessarily true. Pareve seems to be a label for a certain class of kosher foods. They contain neither meat nor dairy. It was with no small amount of excitment that I found this on the kosher part of the shelf at my local mega grocery store.
After eating one of these delectable little cookies, I imagined that a Kit Kat and one of those really cheap sugar wafer cookies (the kind that you probably only had at your grandmas house) had a sordid love affair that was both passionate and yet doomed to fail. It would never work between the two confections. On was a fairly major celebrity, the other spent its time attracting ants in the bargain bin of the local drug store. I have to think both parents were a little dismayed when they discovered they were having a child. In the end they decided to turn the kid loose to fend for itself and what we ended up with is what happens when we let children name themselves. A really sweet kid with a really stupid name.
So there you have it. Those are some of the things that I have been eating to help keep my stomach sane while the rest of my brain and body go on walkabout. There have been a whole list of other foods that i have enjoyed and I'll be sure to share all of that with you once I see the light at the end of this particular tunnel.
speaking of, by the time you read this i should know whether all this worked, or was for naught. I had my blood test to measure my TSH level today and i should know by tomorrow if I am all set for my RAI treatment. Ill be sure to keep everyone updated on that. Thanks again for reading and supporting me. I greatly appreciate all the comments Iv'e been getting on here and in person when I see people.
It's at this point I want to say thanks again to Radioactive girl for her support and advice. If you are a Thyca patient/survivor or even if you aren't, you owe it to yourselves to become familiar with her story. You can read her blog HERE.
By the way, in case you missed it at the top, this is what Roshambo means.
Your move LID.
[EDITORS NOTE: feel free to click the text links that are embedded in the text. The are meant to help explain something I feel might need clarification. They are not ads.]
Sunday, August 22, 2010
The one where I drill a hole in my head.
I'm 12 days into the LID diet while im typing this, and unfortunately there may be no end in sight. As the title implies, I screwed up. I have been taking a medication called Liothyronine which is a thyroid hormone. As far as i know, its different from the hormone that I will take regularly (Synthroid) once i get past the RAI. (In case you are just joining us, RAI=Radioactive Iodine.) Im pretty sure my doc told me that the Liothyronine is much faster acting, and to be used as a way to alleviate some of the symptoms that i would have after going off my main hormone. That should mean it gets in and out of my system faster right? That's how i understood it anyway, i could be wrong about it. Geeze, hows that for an opening paragraph? Im sure it was both compelling AND rich, right? Ugh.
Are you still with me?
Good. Anyway, my stupid rookie cancer patient mistake came when I discovered that I was supposed to stop taking it when I started my diet and as I said at the beginning, I'm 12 days into it. I don't know how far it will set me back but I feel like a total dweeb for screwing that up. I'm supposed to take a blood test later this week, so ill be able to see what the damage was.
As far as the diet goes, I'm getting better at it. As in I'm getting better at figuring out how to make up some fried goodies to eat. I'll expound on that more in a minute, but first I need to crack open my dome and let out some of the things that have been swirling around in there.
I want some of you to try to balance a book on your noggin' while you read this...
Look, I know that I should be taking the opportunity to broaden my culinary horizons by trying out new foods. Bravely sailing my grocery cart into the uncharted aisles of the produce section or some such nonsense, but let's get real for a moment. Let's all remember that I've gone through a relatively crappy couple of months. I'm sorry, but at this point, I don't really need or want to embrace another major change in my life. It probably sounds like I am whining and overreacting a little bit and that might prove to be true, but at this point these are the feelings I have. Rationally, I know that the diet is only temporary and that soon enough I'll be able to drown myself in delicious cheeseburgers, or slide down a smokey river of brisket and sausage and barbecue sauce if I want. However, it seems like one more stupid thing I have to and deal with, and frankly, I'm running out of patience and energy for this shit. (Pardon my français)
It's been hard enough coming to terms with my cancer and the effects it has had on my life in the past and how it will continue to effect me in the future. Making approximations of familiar foods keeps me happy. Making my house smell like fried potatoes is not only fun, but helps to keep that little Maslow button in my brain pushed. Once I put some distance between me and my surgery and recovery, ill try to get back into a regular diet and exercise. I feel like i have to because, I've recently read that my type of cancer recurs in 20%-30% of folks who get it once. That's terrifying to me. (Sigh) I currently have youth on my side even though the lease is running out on it. I still have time to rectify most of my lifestyle mistakes. It's hard though, to suddenly change gears in the middle of a life that is already on cruise control. In previous posts I've mentioned the Body For Life diet and i plan to return to it once I'm able. In fact, I'm kind of excited about it because I anticipate much better results once my hormone situation is back on track.
In a lot of ways I am still trying to wrap my noodle around my current situation. It has been both good and bad talking to other Thyca survivors/patients. It's been good because you finally realize that there actually other people who have been through what you are going through, people who can validate your feelings, both physical and emotional. If you are a newly diagnosed patient, or if you are a family member of one, please seek out as much help like this as possible. I know it sounds cliche, and it is, but other patients are your best resource as far as what to expect on your road ahead. Those of you who have helped me, and manage to read this, I want to say thanks to you. You have been great and I hope one day to pay forward the help and support and knowledge that you have given me.
On the other hand, it's been scary to talk to these people because I am seeing for the first time just how big a deal this thyroid cancer thing really is. Its like my job.
Er, that sounded bad. let me explain.
For those of you who don't know, I work at a local television station and I told some of the folks that I work with that it's like the first time you realize that hundreds of thousands of people see the work we do. That the shows we do actually manage to escape outside of the walls of our building. Every time I screw up, a boat load of people see it. If I stop to think about that, it can be paralyzing. That's the kind of thing I felt when I realized how widespread thyroid cancer is. It suddenly ceased being a local/nick problem and I felt simultaneously empowered with new and better information yet, had become much smaller, and in some ways much more powerless against such a beast. I can only imagine how other folks with worse cancers handle this. Its hard to imagine that you can beat such an animal when so many others have struggled so greatly with it.
You know, after re-reading that last paragraph it seems like I might be a little defeated, but I'm trying to keep my head up. Despite the severity of my cancer, I still have a great prognosis. My doctors say that there is no reason that I shouldn't recover fully from this and and at this point, I have to trust them. I have to trust their remedies and solutions to my particular problems. I have to keep in mind that for as much that has gone wrong, there has been a lot that has gone right for me:
The surgery went fairly well. There were some complications and the recovery was hard but considering the complexity and sheer length of the surgery I say it was a win.
I still have all my structures and functions that run through my neck. I can shrug my shoulders and my face doesn't look like Sloth from "The Goonies. That means no nerve damage. Yay for not looking like Sloth.
I can still talk. This is a biggie, considering that my right vocal chord was encased in tumor. (i read the surgical notes the other day, and that's the word he used.) It has been a long time coming back, but I can say that I have seen great improvement in the last couple of days. I finally sound a little more like myself.
A large part of the cancer is gone. Hopefully. My doc says that he is going to hit me with a fairly heavy dose of RAI which will hopefully (again) kill of the rest of my thyroid tissue/cancer in my body. There's a lot of hope goin on here.
I have a great support system. This is arguably the best thing for a cancer patient to have, and I'm blessed. I have had the greatest support from friends and family. I get a little overwhelemed when i think about it too much. Once again, to to all of you I offer an extremely heart felt thanks. I know it seems like I do this at the end of every blog post, but I cant say it enough.
Wow, this post really got away from where I wanted to go....
Alrighty then, now that I got all that off my plate I feel better. I was planning on making this a post about the ways I've discovered to make and eat LID safe junkfood, but it turned into this. I'll post that next time.
Friday, July 30, 2010
As it turns out, I don't suck.
In a word, Cancer.
PRO TIP: if you think you might have any kind of serious illness, what ever the hell you do, DO NOT look it up on the internet. Nothing good will come of it. In my case there are 4 different kinds of thyroid cancer, and one of them is absolutely horrible and almost always fatal. You can imagine where my mind went with that.
The next couple of weeks were emotionally up and down. If i thought about it too much i would start to freak out a little bit. All in all though i think i managed to keep a fairly positive outlook on the whole thing. Its not like i had a really aggressive cancer or anything. What i had was extremely treatable and chances were that i would recover and be just fine. Since I'm a lazy person, i was just dreading having to go through all the crap that i knew was going to happen. Like the surgery and the recovery, and the diet and the radioactive iodine treatments, endless blood tests.....blah blah blah.
Fast forward to July 13th when i actually had my surgery. I really don't remember much of it. I know that we got to the hospital early in the morning. So early in fact, that the damn doors to the surgery center weren't open and we had to walk around the entire hospital to get in. (Honestly, is it too much to think that if the surgery center schedules you to be there at 5am that maybe the doors to the surgery center be open at or before 7am?) Once we got checked in i remember that i really wasn't nervous or anything. Once my name was called we went in, and i changed into my surgical gown.
I honestly don't know how long it took me to wake up after surgery but i woke up in the intensive care unit, and i was not too happy to discover that A) i still had a breathing tube in me and B) i was restrained. I'm still not terribly sure why i was restrained, but i remember fighting it pretty hard. And everything hurt regardless of the fact that i was on a morphine drip. My shoulders hurt, my hips hurt, my neck hurt (imagine that) and the worst part was i couldn't say anything to anyone because of the breathing tube. It was a really long first night as i recall. I couldn't really sleep even though i was exhausted and on boatloads of painkillers. My biggest obstacle to sleep was this freaking alarm that went off when my oxygen level got too low (i think). I guess i wasn't breathing deep enough and that put me at risk for pneumonia or something. On some level i knew that that alarm was for my safety but the fact that it went off every time i started to drift off pissed me off. The nurse wasn't helping either when he told me that i would have to breath deeply for several hours before the breathing tube could be removed. So i breathed. Eventually the tube did come out and the restraints came off and i was able to get some sleep.